--MAY HIS LIFE TOUCH YOURS AS IT HAS TOUCHED OURS!! AT THE BOTTOM OF EACH PAGE CLICK ON "OLDER POSTS" AND YOU WILL BE ABLE TO GO THROUGH THE WHOLE STORY OF OUR SWEET BABY!!
Hey everyone, we have decided to set up a blog for our family so we can keep eveyone informed on what is going on with Kaden. Many of you know, but for those of you who don't here is a quick overview. Kaden has a bilateral cleft lip and pallet. He has a very, very flat nose which is even difficult to see on ultrasound. His top two ventricles in his brain were the wrong shape and now are filling up with a very large amount of fluid. They think he also could be missing part of something called the corpus callosum, which is in the top of the brain, but we won't know that for sure until after he is born and has an MRI. At our 29 week ultrasound his head circumfrance was measuring at 35 weeks because of all the fluid in his venticles. He was supposed to have between 10 and 12 mm of fluid and had around 33 mm in each ventricle. They are guessing his head will just continue to grow until the fluid is drained. Right now his cleft is not even an issue because that can be fixed a few months after he is born. The doctor's are concerned because the fluid is pushing all of his soft brain tissue against his skull and could cause brain damage or difficulties breathing. The neurologist is saying that he has atypical hydrocephally, most babies with hydorcephally do not have this amount of fluid. Because of his head size, they are going to take him C-section at the U of U hospital somewhere in the last week of January and the first week of February, he will be right around 32 weeks. His body will be that of a 32 week baby, but his head potentially could be as large as a 40 weeker, but only at the top, and he is missing parts of his face. It's kind of an interesting picture to paint in your head. Right after he is born they will take he right to Primary Children's for an MRI for placement of a shunt to drain the fluid. If he is stable he will be in the NICU there for 6-8 weeks. Kaden does only have a 40% chance of surving right now. I have started steroid shots to hopefully increase his breathing capabilites when he is born. We really feel honored that God has chosen our family to send this special spirit and are praying that the Lord will help us be both willing and able to accept his will, whatever it may be. We will keep you all posted on the date of delivery and try to get picures up as soon as we can, but if will probably be a pretty crazy day.
No comments:
Post a Comment