OUR PRECIOUS LITTLE KADEN

Today we got the results of Kaden's MRI. The doctor first explained things to me and then I told Jeanine. Many of our family were there as we were going to bless Kaden so the doctor took all of us into a room and explained the whole situation to everyone. It was very moving to see the director of the NICU cry as he explained to us what was wrong with Kaden. He truly has a love for these little spirits he works with. I will start at the top and work down. Kaden's Hydrocephalus was not caused by an excess of fluid, or a blocked passage from drainage. It developed because his brain did not fully develop and therefore left a large void that filled with fluid. Draining the fluid will do nothing to improve his condition. He does have what is called Lissencephaly (Smooth Brain). This will result in his inability to move, communicate, think etc. The dammage is widespread and involves some of the other important parts of the brain such as the Pituitary Gland which is the control center for the essential functions of the body. His brain stem appears to be intact which is why he has relatively stable breathing and a stable heart rate. Kaden's little right eye did not form. His left eye is very tiny and non-functional. His optic nerve didn't form so even if he had eyes he would be blind. All of these things combined with the cleft give him no chance of having a normal life on this earth. He is still with us in large part because of the life support systems that are aiding him. If the life support systems for some reason were to fail, he to would fail. We have been told that we are incharge as to when to allow our precious little one to return to his Heavenly Home. Once the support has been taken, we will be allowed to have our family with him in a hospice setting in the NICU. After being taken off supports he could last minutes or days, we really have no idea how long. If he stabalizes on his own, we will be allowed to bring him home to pass away in the comfort of our home. If not we will let him pass in the hospital. Once we decide to remove life support, no further intervention other than eating will be given since this will only prolong the inevitable. Tonight we blessed Kaden. This is similar to Christening in other religions. In the blessing given to him, I told him that we were very greatful to have had him in our lives and that when the time is right he may return to our Heavenly Father. Needless to say it was very emotional. Thank you all for the "Cloud of Prayers" that you have allowed us to ride for the last little while. I know that is why we have been able to cope with all that has happened. If anyone feels that they need to come and see Kaden please do so. Remember that my wife or I must be with any visitors and anyone under 18 will not be admitted. We think that we may only have 2 or 3 days left to be with him. Please call prior to coming. When we take him off of life support we ask that you allow us to have that special time with our children and our parents. We know that all of you could or should be there, but we feel that we need this time to be an earthly family.

Thanks Love Spencer and Jeanine and Kids.

We will post more pictures as soon as we can